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SECOND READING SPEECH
Disability Services Bill 2011
Disability Services Bill 2011
Mr Speaker, I move –
That the Bill now be read for a second time.
The purpose of this Bill is to inform the way that specialist support
services are provided to people with disability. This Bill provides for the
funding of specialist disability services and related research and
development activities. The Bill establishes a requirement that all
services provided under this Bill will respect the inherent dignity of
people with disability, along with their individual autonomy, freedom to
make their own choices and their right to independence. The Bill
requires that care and support provided is person-centred and supports
the universally adopted principle of “nothing about us without us”. New
planning and reporting requirements have been developed. The Bill
proposes a quality and safety framework for services which includes a
statement of principles and requires that services meet specified
standards. The Bill also provides for new protections, including the
regulation of restrictive practices.
Mr Speaker I am proud to bring this Bill before the House. It represents
a truly contemporary approach to the delivery of services to people
with disability, an approach that puts the person at the centre of all that
we do in service delivery and seeks to ensure the services that are
delivered are of the highest standard. Before proceeding to consider the
main features of the Bill I will outline the background to its development
in some detail.
This Bill, when adopted, will replace the exiting
Disability Services Act1992.
This Act was developed in response to the first CommonwealthState Disability Agreement in 1991, which transferred the responsibility
for the administration of accommodation and support services from the
Commonwealth Government to the States and Territory Governments.
The scope of the Act was limited to specialist disability services that are
funded or provided by the Department of Health and Human Services.
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The
Disability Services Act 1992 does not cover services provided forpeople with disability that are the responsibility of other agencies, such
as education or transport, or services that are governed by other
legislation. This Bill has a similar scope.
The
Disability Services Act 1992 is not a “rights instrument”, in that itdoes not prescribe rights to individuals. However, the Act does place
expectations on government and funded service providers to observe
certain rights for people with disability. The Bill carries forward these
expectations.
Mr Speaker, in recent years there have been a number of key
developments that have redirected the focus of support services for
people with disability and that have resulted in the need to develop new
legislation. These include:
Australia becoming a signature to the United NationsConvention on the Rights of Persons with Disability
. ThisConvention sets out the legal obligations on States to promote
and protect the rights of people with disability. It makes a shift
from a world where people with disability were viewed as
“objects” of charity, medical treatment and social protection to a
world where they are viewed as “subjects” with rights, who are
capable of claiming those rights and making decisions for their
lives based on their free and informed consent, as well as being
active members of society.
The development of the National Disability Strategy setting outa ten year plan for improving the life for Australians with disability,
their families and their carers. This Strategy focuses on achieving a
society that is inclusive and enabling, providing equality and the
opportunity for each person to fulfil their potential. Through this
strategy Tasmania has committed to developing a sustainable
specialist disability support system that is person centred and self
directed , and which maximises opportunities for independence
and participation in the economic, social and cultural life of the
community.
A new National Disability Agreement signed in November2008
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The review and reform of specialist Disability supportservices
. The implementation of the Operational Framework forDisability Services last year has already led to significant changes in
the way Tasmania delivers services. This framework promotes a
new way of working in partnership between government and
services providers and the people that they support. It focuses on
people centred and self directed approaches, ensuring that the
individual or family is at the centre of the service delivery system.
A key aspect of these changes is that all direct service delivery is
moving across from Government provision to the community
sector.
The recognition that institutional care was not appropriate forpeople with disability, the
closure of Willow Court, and anexpectation that government would ensure that such institutional
care could not happen again.
Mr Speaker, in my inaugural speech I spoke of the pain and suffering that
resulted through the incarceration of people in Willow Court. At that
time I pledged to use my position in Parliament to work towards the
creation of a socially inclusive Tasmania; a Tasmania which respects the
human rights of all its citizens and extends its care and support to
vulnerable members of our community.
Willow Court provided institutionalised care for people with disability.
Every-one aware of what was occurring within Willow Court was
affected by the tragic stories emanating from that place.
Willow Court shut its doors in 2000. It was closed in recognition that
practices such as the institutionalising of people with disabilities and the
consequent damage and abuse are not acceptable. The former Health
Minister, Judy Jackson, must be recognised for her courage and
determination in pushing through the closure of Willow Court eleven
years ago.
Government has formally recognised that institutional care is no longer
appropriate for people living with disability. However the closure of
Willow Court alone was not enough. More needed to be done to
ensure that the approach of institutional care could not happen again.
This included reviewing the
Disability Services Act 1992 and developingnew legislation to prevent past mistakes being repeated.
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In October 2008 full support was given by all members of this House to
commence an investigation into the features of a new Disability Services
Act.
The investigation was to be undertaken by the Joint Standing Committee
on Community Development, looking at:
the objectives, outcomes and principles that should form the basisof the new Disability Services Act to ensure the approach of
institutional care as experienced in Willow Court could not
happen again;
whether the legislative outcomes reflect the TasmanianGovernment’s obligations to protect human rights under the
United Nations Convention on the Rights of Persons with
Disabilities; and
whether the quality and safety framework governing specialistdisability service provision is consistent with modern approaches
to service provision.
Mr Speaker, in developing the new Bill consideration has been given to
the original terms of reference of the Standing Committee. The issues
contained within the terms of reference have also been considered
through an extensive consultation process and I thank most sincerely all
who contributed to that process and the development of this Bill.
Mr Speaker, before I detail the features of this Bill I would also like to
acknowledge the enormous contribution parents and carers make to the
lives of others and acknowledge and show appreciation of their role and
the personal sacrifices they make to fulfil that role.
The Tasmanian Government has been working closely with people with
disability, families, carers and community sector organisations to bring
significant change and improvement to the delivery of services.
I would also like to acknowledge the contribution of members of the
Steering Committee who have provided advice throughout the review of
the Disability Services Act 2011 and the development of this Bill.
I will now deal in detail with the intent and operation of the main
features of the Disability Services Bill.
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Definition of Disability
The definition of disability is important as it is used to determine
eligibility for specialist support services. This definition has been
expanded to include specific reference to disability resulting from
cognitive impairment. This is consistent with amendments to the
definition in the previous Commonwealth State Disability Agreement.
The definition also includes consideration of the impact that the
impairment has on the person’s capacity to participate in society. This
allows for an increased focus on the supports needed to access and
participate in society as so many of us take for granted.
Definition of Restrictive Intervention.
Restrictive interventions are sometimes required to protect the person
with disability, or another person from serious harm. Provisions within
the
Disability Services Act 1992 are inadequate in that they do not affordthe level of protection required. It is necessary to define restrictive
intervention so as to be able to make provisions to protect people with
disability from the inappropriate use of restrictive interventions. A
significant feature of this Bill is that it requires approval for the use of
restrictive interventions, and that approvals will only be given after an
assessment that the intervention is in the best interest of the person
with disability, and that, it is the least intrusive intervention possible. The
Bill introduces a requirement that, where ever possible, government will
work towards the elimination of the use of restrictive practices. The Bill
also introduces penalties for the inappropriate use of restrictive
interventions.
Principles
This Bill requires that all activities under this Act will be provided in a
manner that meets the expectations established within the Principles.
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This means that any activity undertaken under this Act, whether it is by
the Minister, the Secretary of the Department, departmental staff,
researchers and funded service providers, must apply the Principles.
Mr Speaker, the Principles in this Act reflects the broader human rights
perspective in line with Australian ratification of the United Nations
Conventions on the Rights of Persons with Disability.
This means that
the needs and best interest of persons with disability will bepromoted;
decisions and actions that may directly affect a person withdisability should only be taken after the person has been
consulted;
decisions and actions should take into account the wishes of theperson; and that
the dignity of persons with disability and their individual autonomy ,including the freedom to make their own choices and their right
to independence will be respected.
In a significant improvement to the current act the Principles also
include specific recognition of the specific needs of children with
disability.
Standards
The Bill requires that Standards be developed and incorporated into
regulations. Services provided under this Act will be required to comply
with the Standards. Given the new Standards which are being developed
nationally have not yet been finalised; provision has been made to carry
forward the existing standards in the
Disability Services Act 1992.Planning and Reporting.
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Mr Speaker, this part introduces requirements for Government, in
consultation with service providers and people with disability, to develop
three yearly strategic and operational plans. The Bill also requires annual
reports against the plans. These provisions are intended to make clear
the role of government in planning and reporting, increasing both
accountability and transparency.
Individual Plans
The Bill introduces a requirement that, where an individual is receiving
direct funding and support services, individual plans are to be developed.
The intent behind this requirement is to ensure that the needs of the
person are central to any service provided, and that services are
provided in a manner that is person-centred and self directed. The
planning process will provide increased choice and control for people
with disability, whilst encouraging service responses that are flexible,
innovative and effective. Individual plans will be broader than the
specialist support services that may be provided through the
Department. If a person is unhappy with a decision taken by the
Secretary in relation to an individual plan, they may seek review of that
decision through the Administrative Appeals Division of the Magistrates
Court.
Funding
Mr Speaker, the provisions within this Bill will allow the Secretary to
provide a grant to enable a person or organisation to provide specialist
disability services, research and development activity, or, in some
circumstances, purchase “other goods or services”. These provisions
allow for a more flexible approach to the provision of funding. The Bill
will allow for the provision of funds direct to an individual, allowing the
person or their family to self manage the provision of services. This is a
major step forward to the establishment of self directed services. This
will allow for greater flexibility when developing the most appropriate
suit of services to support a person. Provision has also been made to
enable the use of funds to purchase other goods or services, where
these are required to remediate the disadvantage or difficulty arising
from the persons disability.
Review of Grants
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The Secretary is required to review grants at least every three years.
The review is to consider compliance with the principles, standards and
other terms and conditions. Importantly the review is also to consider
the extent to which the grant has enabled the quality of life of the
person receiving the service to be improved.
Grants provided to a private person will be reviewed at least once a
year. The focus of the review includes the individual plans, ensuring that
a persons needs and the appropriateness of services provided are
considered. The review of the individual plans will also consider how
well the obligations of other persons to provide services to the
individual have been fulfilled, and whether there has been adequate
coordination of the provision of services.
Monitoring of Grants
Mr Speaker, this Bill establishes a process for the Secretary to follow in
the case where services are not provided to the required standard. This
process has been modelled on provisions within the Aged Care industry.
It requires that in the first instance, the Secretary explore supporting the
service provider to address the areas of concern, through to providing
for the termination of funding agreements.
Entry of premises
This Bill establishes the right of authorised officers to enter funded
premises. Similar provisions are in place in most other jurisdictions
across Australia.
It is intended that this right will only be used to determine the safety and
well being of the persons receiving the specialist disability support
services, the quality of services and whether the terms and conditions of
the grant are being met. It is expected that this provision will only be
used where there are reasonable grounds to be concerned for the safety
and well being of the person receiving the services, and other steps have
failed to ascertain this.
An authorised officer will be able to talk with the person receiving the
services (or their nominee), talk with staff and examine documentation
related to the concern.
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Mr Speaker these are important new provisions which are part of a
broader strategy to ensure the safety and well being of people receiving
specialist support services.
Restrictive practices
The current Disability Services Act provides for an Ethics Committee to
monitor programs and services in respect to aversive, restrictive and
intrusive treatment practices. This Bill proposes disbanding the Ethics
Committee, replacing it with a more appropriate suit of initiatives. This
will include establishing a Senior Practitioner, who will become the first
point of contact for matters relating to restrictive practices. The Senior
Practitioner will provide advice on requests for the approval of
proposed restrictive practices, and have the authority to investigate the
any inappropriate use of restrictive practice.
Currently the Ethics Committee has two main functions being:
to monitor programs and services in regard to aversive, restrictiveand intrusive treatment practices; and
to report or give recommendations to the Minister in respect ofsuch programs or services or in relation to specific treatment
practices.
Under the current Departmental processes referral to the Ethics
Committee is required for funded service providers to proceed with
restrictive or intrusive practices.
There has been concern expressed as to whether the current legislation
adequately provides for the Ethics Committee to determine whether
individual behaviour management plans developed by funded service
providers, which include the use of restrictive and intrusive practices are
appropriate.
The Ethics Committee has provided advice that the current legislation is
insufficient to protect clients from inappropriate practices, and that the
Committee should be replaced with a structure that better meets the
needs of the sector. This view was widely supported throughout the
consultation process.
This Bill replaces the Ethics Committee with:
a requirement that, should the use of a restrictiveintervention be considered, appropriate approvals must be
in place,
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that responsibility for the approval of restrictive practicesrest with either the Secretary of the Department for Health
and Human Services or the Guardianship and
Administration Board
the establishment of a senior practitioner role withresponsibility assess and provide advice on requests for
approval;
an increased capacity to provide practice advice to serviceproviders on alternative behaviour management strategies;
provisions for the capacity to enter, inspect and report onfunded services and,
additional requirements relating to a Quality and Safetyframework.
Mr Speaker both the Ethics Committee and the President of the
Guardianship and Administration Board have expressed support for the
proposed arrangements outlined in this Bill.
Senior Practitioner
Mr Speaker the establishment of the position of Senior Practitioner is an
important initiative within this Bill. This position will have responsibility
to provide a broad range of services that will contribute to the
reduction and, where appropriate, the elimination of restrictive
practices. This will include providing education and information on the
use of behaviour management techniques and on the rights of people
with disability that may be subject to the use of restrictive interventions.
The Senior Practitioner will also provide advice to the Secretary and the
Guardianship and Administration Board to inform their decisions on
whether to approve requests for the use of restrictive interventions.
This Bill establishes that the unauthorised use of restrictive interventions
is prohibited. Penalties of up to 200 units may be imposed for breaches
of this requirement. The Senior Practitioner will have authority to
investigate where there are reasonable grounds to believe that an
inappropriate restrictive intervention is being undertaken.
Requirement for the approval of restrictive interventions
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Mr Speaker two pathways for the approval of restrictive interventions
are provided. The Secretary of the Department for Health and Human
Services approves environmental restrictions. An example of this may be
placing a lock on a fridge.
The Guardianship and Administration Board will have responsibility to
consider applications for restrictive interventions that involve personal
restrictions. Personal restrictions may include physical contact or an
action that restricts the liberty of movement of a person. The Board can
also approve environmental restrictions.
Where a person with disability, a disability provider or a funded private
person is dissatisfied with a decision by either the Secretary or the
Guardianship and Administration Board they may seek a review of the
decision by the Magistrates Court.
Mr Speaker the approval of any restrictive practice will not be taken
lightly. The Secretary may only grant an approval after they have
consulted with the person that the intervention will apply to; any person
with expertise in the carrying out of restrictive interventions of that type
and the senior practitioner. The Secretary must also be satisfied that the
restriction will be carried out to ensure the safety of the person or
others; that the intervention is the least restrictive as is practicable in
the circumstances and that the intervention is in the best interest of the
person with disability.
An approval by the Secretary expires 90 days after it is granted.
Similar requirements are established for the Guardianship and
Administration Board. Approval by the Board expires 90 days after it is
granted, unless the approval was granted at the conclusion of a Hearing,
in which case it may be in place for up to 6 months.
Review Process’s
Mr Speaker, there are many provisions within this Bill which provides
authority to make decisions of great importance to individual lives.
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People with disability have access to a number of independent
complaints and dispute resolution bodies available to Tasmanians to
protect their rights. However through the development of this Bill it
became clear that there are a number of areas where additional review
processes are required. This Bill identifies a number of circumstances
where a person with disability, a disability services provider or a funded
private person may seek to have a decision taken by the Secretary
reviewed through the Administrative Appeals Division of the Magistrates
Court. This includes decisions to approve or not approve individual
plans, decisions to approve or not approve restrictive interventions.
Coordination of services and Information Sharing
The provision of support services often involves a broad range of people
across a number of disciplines working together. This can be difficult for
people with disability and their families to navigate. The individual plans
are intended to provide a way to document and coordinate the broad
range of services that may be required to adequately support a person
with disability. This Bill establishes a requirement that the Secretary will
take reasonable steps to assist in the effective coordination of support
services including health and psychiatric services, specialist education
services and other specialist assistance provided by both the Tasmanian
and Australian Government.
The coordination of services also requires effective communication
between those working together to provide support whilst maintaining
rights to privacy and the inherent dignity of the person with disability. .
This Bill limits the right to share information to circumstances where the
information is necessary or desirable for the assessment of need, to
determine whether services provided are appropriate, and for the safety
and welfare and wellbeing of the person or other persons. Wherever
possible this is to be with the consent of the person with disability to
whom the information relates.
I commend the Bill to the House.